Self-injury in people with intellectual disability and epilepsy: A matched controlled study

Self-management interventions for epilepsy in people with intellectual disabilities: A scoping review

PURPOSE People with intellectual disabilities (ID) experience higher incidences of chronic health conditions, poorer health outcomes, and increased risk of premature death. Epilepsy is 20 times more common in people with ID than in the general population. It tends to be more difficult to diagnose, more severe, and more difficult to treat. Improving epilepsy self-management in this group is advo...

Use of health services in the last year of life and cause of death in people with intellectual disability: a retrospective matched cohort study

OBJECTIVE To describe the cause of death together with emergency department presentations and hospital admissions in the last year of life of people with intellectual disability. METHOD A retrospective matched cohort study using de-identified linked data of people aged 20 years or over, with and without intellectual disability who died during 2009 to 2013 in Western Australia. Emergency depar...

Health and sleep problems in Cornelia de Lange Syndrome: a case control study.

BACKGROUND Self-injury, sleep problems and health problems are commonly reported in Cornelia de Lange Syndrome (CdLS) but there are no comparisons with appropriately matched participants. The relationship between these areas and comparison to a control group is warranted. METHOD 54 individuals with CdLS were compared with 46 participants with intellectual disability (ID) of mixed aetiology wh...

Behavioral disorder in people with an intellectual disability and epilepsy: A report of the Intellectual Disability Task Force of the Neuropsychiatric Commission of ILAE

The management and needs of people with intellectual disability (ID) and epilepsy are well evidenced; less so, the comorbidity of behavioral disorder in this population. "Behavioral disorder" is defined as behaviors that are difficult or disruptive, including stereotypes, difficult or disruptive behavior, aggressive behavior toward other people, behaviors that lead to injury to self or others, ...

Running head: SELF-INJURY Self-injury and Behavior Supports for People with Intellectual Disability